Development of the My Positive Health dialogue tool for children: a qualitative study on children’s views of health

Patient perspective – Original research
  1. Abstract

Background Children’s views of health were explored in order to develop a health dialogue tool for children.

Methods A qualitative research design was used as part of a codesign process. Based on semi-structured interviews with both healthy children and children with a chronic condition (aged 8–18). Two approaches were applied. The first was an open exploration of children’s views on health, which was then thematically analysed. Subsequently, a framework was used, based on the six-dimensional My Positive Health (MPH) dialogue tool for adults, to guide the second part of the interviews, focusing on reviewing the children’s view on health within the context of the framework. For the final draft of the dialogue tool, a framework analysis was conducted and then validated by members of the ‘children’s council’ of the Wilhelmina Children’s Hospital.

Results We interviewed 65 children, 45 of whom had a chronic condition and 20 were healthy. The children described a broad concept of health with the central themes of ‘feeling good about yourself’ and ‘being able to participate’. Based on the subsequent framework analysis, the wording of two of the six dimensions of the MPH dialogue tool was adjusted and the related aspects were adapted for better alignment with the children’s concept of health. After these modifications, the tool fully matched the children’s concept of health.

Conclusion The MPH dialogue tool for children was developed for children with and without a chronic condition, to help them open up about what they consider important for their health and well-being, and to improve directorship over decisions and actions that would affect their health. The MPH dialogue tool aims to support healthcare professionals in providing the type of care and treatment that is in line with the needs of their young patients/clients.


Introduction

In recent years, the view on health has changed from a biomedical model focusing on health and illness, to a concept that also considers social and psychological aspects and the individual’s personal perspective on health. Within this trend, Huber et al propose a new concept that also takes people’s capacity to adapt and self-manage into account.1 Positive Health brings this new concept of health into practice. It focuses on fulfilment in life, with a real sense of well-being even in the presence of a chronic condition.2 To incorporate this concept into healthcare, the My Positive Health (MPH) dialogue tool was developed. This tool was created to support people in expressing their strengths and addressing their health-related needs, with the help of their healthcare professionals (HCP).2 The MPH dialogue tool (ie, the version for adults) consists of six dimensions that represent the aspects associated with health (online supplemental appendix A).

Read the whole article:Development of the My Positive Health dialogue tool for children: a qualitative study on children’s views of health | BMJ Paediatrics Open

  1. Stacey de Jong-Witjes1Marijke C Kars2Marja van Vliet3Machteld Huber3Sabine E I van der Laan1Eva N Gelens1Emma E Berkelbach van der Sprenkel1Sanne L Nijhof1Maretha V de Jonge4Hester Rippen5, Elise M van de Putte1
  2. Correspondence to Dr Elise M van de Putte; E.vandePutte@umcutrecht.nl